With
the summer sun still bearing down, it is hard to believe plans are underway for
the inaugural Jingle Bells for Basal Cells event, a 5k and family fun run set
for Saturday, Dec. 5.The event is sure
to bring hundreds of people to downtown Bartlesville, but serves an even
greater purpose – creating awareness of the condition of basal cell carcinoma
nevus syndrome and raising critical dollars for research and education.The community has rallied around this
valuable cause and sponsorships are going fast.The deadline to sponsor the event is Sept. 15.
Basal
Cell Carcinoma Nevus Syndrome is a genetic disorder afflicting approximately 1
in 67,000 children.The condition is an
inherited, genetic condition resulting in multiple and early onset basal cell
carcinomas and other tumors.Other
physical manifestations include jaw cysts, a broad forehead, fluid on the
brain, bifid ribs, scoliosis, and palmar and plantar pitting. Patients must often undergo countless
surgeries throughout their lives to combat the effects of the disorder.
Jingle
Bells for Basal Cells focuses on educating the community about the disorder and
raising funds for organizations like Basal Cell Carcinoma Nevus Syndrome Life
Support Group (www.BCCNS.org), an agency
dedicated to supporting those with the condition and advancing education within
the medical community.
“As
many people now know, the Jingle Bells for Basal Cells 5k Run was established
in honor of our son, William, who was diagnosed shortly after his birth in May,
2008,” says Christen Gullatt.“As the
event plans have crystallized, it is so encouraging to see the enthusiasm and
support of the people of our community who want to make a difference.”
Jingle Bells for Basal Cells has partnered with Bartlesville Community Foundation (BCF) in structuring a mechanism for tax-deductible donations to benefit the event.Through a fund established with BCF, donors can easily give in support of the event.
“We’ve already been contacted by a number of
local businesses and individuals who have extended their support to this great
cause,” reports BCF executive director Julia Crouch. “As preparations for event
publicity and set-up are finalized, those who want to sponsor the event should
act quickly.”For more information about
the event or to make an on-line donation, visit www.jinglebellsforbasalcells.com.Donations can
also be sent directly to BCF.
